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runsimonrun
Simon Moss
runsimonrun
Story
I'm running my first ever marathon. A year ago I'd never run anywhere and then I entered the 9km run. Since that I've run 2 half marathons but this is the big challenge. I'd really appreciate your support in getting me to my fundraising target.
I'm raising money for Cystic Fibrosis research. Current treatments in the final stages of trial are almost as good as a cure for Cystic suferers. They have developed a drug which has seemingly miraculous effects on about 10% of sufferers. Current trials are looking at ways of combining this drug with another to make it as effective for all strains of CF.
This is an amazing time for the Cystic Fibrosis community and I want to be a part of it. With your financial and moral support I can drag my flabby, lazy body through a gruelling 42km run and hopefully raise a shed load of money for this amazing charity.
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Cystic Fibrosis New South Wales
Cystic fibrosis (also called CF) is the most common, life-limiting genetic condition affecting Australians. 3,500 people are living with CF in Australia and 1 in 25 people carry the recessive CF gene change.
Babies born today with CF can expect to live well into adulthood. There is no cure but advances in treatment and care are helping people to better manage their CF.
CF causes an abnormal build-up of thick and sticky mucus in the lungs, airways and digestive system. Treatment requires intensive daily physiotherapy to clear the lungs and airways, countless medications and frequent hospitalisations.
Our mission is to promote awareness of CF, provide support, advocacy and information to the CF community, and fund medical research into the fight against CF.
As a member of the national CF federation, we work with the communities of NSW and Victoria. We are a not-for-profit organisation and we rely on the generosity of people in those states for financial and volunteer support.
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